Mary Lou Ballweg, Co-Founder, President and Executive Director of the Endometriosis Association (EA), the first organization in the world created for those with endometriosis. A global non-profit association, EA has a network of chapters, groups, sponsors, and women with endometriosis in 66 countries. Ballweg founded the organization in 1980 after being diagnosed with endometriosis and experiencing frustration with medical professionals who lacked awareness and held dismissive attitudes toward the disease. Although it began as a self-help organization to provide information and support to Milwaukee women, EA has grown to support research, educate the medical community, produce books and journal articles and facilitate international conferences on the subject.

Endometriosis affects an estimated 89 million girls and women in the world today – 6.3 million in the U.S. It is a puzzling hormonal and immunological disease that strikes those as young as 8 and those well past childbearing years. Endometriosis is not only one of the leading causes of infertility, it often causes debilitating pain, atopic diseases and is associated with an increased risk of autoimmune diseases, cancer and other physical complications.
Ballweg began her career in communications, having served as the Managing Editor of Investor, Wisconsin’s Business Magazine and then launching her own film and communications company prior to being diagnosed with endometriosis. In the thirty years since she founded the organization, Ballweg has created research partnerships with the Medical College of Wisconsin, Dartmouth Medical College, the National Institutes of Health and Vanderbilt Medical School. She has published four books, overseen the production of three educational videotapes (including an award-winning teen video), developed and executed two million-dollar-plus educational awareness campaigns, and written numerous journal articles, chapters for medical texts and newsletters. Despite having no formal medical training, she is featured in the International Who’s Who in Medicine as the person most singly responsible for calling attention to endometriosis.
Ballweg was raised in the Milwaukee and Madison areas. She has a B.A. from UW-Madison and has a long list of academic and professional accomplishments, including having been instrumental in raising over $25 million for research in EA’s first 25 years. Ballweg’s partner is Jim Dorr and she has a daughter, Aquene Freechild.